Over
a decade ago, a family found itself in a predicament following the discovery
that their son had a learning disability. Unfortunately, as he grew up, no-one had
brought their attention to it and by the time they realised it because the
pre-school that he went to just pushed him along.
When
it was time for him to go to school, the Paivas realised that their son, who we
will call Ben, was not really ready for that. They decided to investigate, and
that was the beginning of their grueling journey to accord their child a chance
to get an education like any other child.
“We spent a lot of our time to research to see how best we could help
our son, which resulted in us being told by one of the people we went to see
that with children like our son, the most important thing that you can give
them is stability in their life and their home environment,” said Sonia Paiva,
the child’s mother. But they wanted
their child to learn, and an advisor recommended that he be put in a school that
would accommodate him, with children of his level of functioning, and at the
same time let him go to meet the children in the mainstream.
“When
we came back to Swaziland there was absolutely [no school] like that in both
the government and private institutions.” The Paivas then approached Enjabulweni,
and realised that the need for a special needs class was there but there were
no facilities for that. They then came to an agreement with the school to build
the Paiva Remedial Centre while the school provided the professionals. And
that’s how what is known as the Learning Centre started. That staunch determination by desperate
parents has resulted into a huge blessing for children who would also have had
nowhere to go.
Enjabulweni
Head of School, Kathy Thompson said there has always been a huge demand for
special needs education and a remedial class. The Learning Centre accommodates
children with autism, Down syndrome, ADHD, dyslexia, the physically disabled,
and those that just need a boost to settle in the mainstream. Owing to the fact
that there aren’t many options in the country, there is a long waiting list for
people hoping to secure a place for their children with learning disabilities.
“We no longer put people on the waiting list, we are forced to turn them away,”
said Thompson.
More
than a decade since the Paivas’ struggle, there sadly hasn’t been much
improvement. One parent facing a similar struggle is Setsabile* from Mvutjini.
She is unemployed and her husband does not make enough to send their autistic
7-year-old son to a private school and cater for their other needs at home.
“When
my son was four years old, I took him to pre-school with hopes that when he
mingled with mainstream kids, his speech and behaviour would improve but I was
very disappointed when the teachers told me that they couldn’t handle him. He
only lasted one term and one day I found him locked alone in a separate class
and they said he’s causing chaos and disturbing the normal kids,” said
Setsabile. After that she could not find placement anywhere else, and was
forced to stay with him at home for two years until she found a place at a
special school.
Setsabile
is still keen to send her child to a mainstream school with a special needs
class so that he can learn proper social skills from the typical children. Presently
she has to hire a taxi to pick him from
a bus stop a kilometer away from home to the special school and back, to a
school about 8 km away. She pays E1 700 per term in taxi fare. Although she is
thankful that her child is in school, she is not entirely happy with the
standards at the school. “The ministry of education must hire therapists so
that our kids get speech and occupational therapy at school,” she said. Getting
therapy at hospitals is challenging because of the expense of taxi fare to go
there and managing the child’s behaviour in public transport.
The
presence of resident therapists is one of Enjabulweni’s biggest strengths. Thompson
said Enjabulweni was focused on inclusivity. “When a child improves, even for
one lesson, we try to include them in the mainstream. Learning difficulties
such as dyslexia, ADD, ADHD are barely residential and are good candidates for
inclusivity,” she added. This process,
however, does not come cheap and Thompson highlighted that the children at the
learning centre don’t have enough teaching assistants. She said the children
needed to have much more therapy, but the Speech and Occupational Therapists at
the school had a huge workload as they also work with children in the
mainstream who might need their assistance. They also have to be paid medical
rates, which is one of the challenging aspects of retaining their services in
the school.
Inclusive
education has been seen to help improve the condition of children with learning
disabilities. Affected children will learn how to relate with others, while
typical kids will grow up with “different” people among them, minimizing the
possibility of them growing up to discriminate against those with disabilities.
Published in Swazi Observer on Sunday
Published in Swazi Observer on Sunday
*Names changed on request
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